The Throm-PED registry, consisting of the basic registry and the IPTN projects, is established to increase knowledge about the epidemiology, risk factors, diagnosis, treatment and short- and long-term outcome of thromboembolism in general, and of specific thrombosis in particular, such as neonatal renal vein thrombosis, portal vein thrombosis, pulmonary embolism, catheter-related thrombosis and arterial thrombosis.
Furthermore, this prospective disease-based registry will enable investigation of use, safety and efficacy of all antithrombotic agents in “real life”. (Preterm) neonates and children until 18 years of age will be included from all over the world. Patients will be followed prospectively as long as the patients are followed by their treating physician for thrombosis or its complications.
Basic Throm-PED Registry
In the basic Throm-PED registry, data will be collected of patients with venous and non-cerebral arterial thrombosis, including age, gender, location and risk factors of thrombotic event, and treatment.
Each member of the IPTN may propose sub-studies using the Throm-PED registry. Each approved IPTN project has its own scientific board, which is responsible for the design and execution of the IPTN project.